Lyme Innovation 2016 Flash Talks

  • Keynote Speaker: Dr. Kristen Honey, PhD
  • Top Lyme Disease Research Priorities: Dr. Nevena Zubcevik, DO
  • Dr. Andreas Kogelnik, MD, PhD
  • Dr. Ying Zhang, MD, PhD
  • Precision Medicine and Lyme Disease: Dr. Neil Spector, MD

Fact Sheet

Virtual Hackathon

  • Lyme Innovation seeks widespread, global participation and input to generate ideas and strengthen project outcomes. To achieve this goal, several virtual participation initiatives have been activated. They will be added to this page on an ongoing basis.
  • Patient-powered platform
    Let your voice be heard: this is a chance for those suffering from Lyme to weigh in:
    http://patientpoweredlymeinnovation.ideascale.com

Data Sets

  • WorldClim – Global Climate Data
  • California Health and Human Services – Open Data Portal
  • Datasets for Data Mining and Data Science – Produced by KDnuggets
  • Hacking Healthcare Entrepreneurship: A Startup Guide Inspired by MIT’s Hacking Medicine – In this ebook by the Kauffman Foundation, you’ll learn about the Hacking Medicine processes and hear from companies who got their start at a Hacking Medicine events
  • Healthcare Collaboration Playbook – This document by the Kauffman Foundation serves to outline how to have successful collaboration between various parties.
  • Country Health Rankings – Health indicators at the country level
  • Hospital Quality Comparison – Produced by the CMS to show satisfaction ratings from surveys at individual entity (hospital) level
  • National Healthcare Quality and Disparities Report – Produced by the AHRQ to show effectiveness, efficiency & safety of care (differences by race/ethnicity, income, etc.) on the national & state level
  • The State of the USA – Provides data on overall health & economic status at the individual community level
  • Postmarket Drug Surveillance Programs – Produced by the FDA showing adverse drug effects reports
  • Centers for Medicare & Medicaid Services Cost Report Data – Shows the cost of delivering Medicare/Medicaid services at different types of facilities
  • Part B National Summary Data File – Provides procedure code data of Medicare services and payments
  • Medicare Health Outcomes Survey – Provides data from the Medicare beneficiary survey on health status indicators (e.g. How many diabetics had an eye exam this year)
  • Women, Infants, and Children (WIC) Participation and Cost Data – Produced by the USDA showing participation & cost of service on the state level
  • Supplemental Nutrition Assistance Program Participation and Cost Data – Produced by the USDA showing SNAP participation & cost of service on the state Level
  • The Office of Women’s Health – Quick Health Data Online – Health Indicators with a focus on women (eg. mammogram rates)
  • Health Information Technology and Health Data Standards – Provides some standards for exchanging health data
  • National Survey of Substance Abuse Treatment Services – Data on substance abuse treatment, trends, cost and facilities
  • Treatment Episode Data Set – Data on substance abuse treatment, patterns & costs
  • DataSF – Open San Francisco Data Sets – Municipal date for San Francisco
  • Center for Biomedical Informatics and Information Technology – Bioinformatics
  • Dartmouth Atlas for Unwarranted Variation – Unwarranted variation in cost and effectiveness
  • National Committee for Quality Assurance (NCQA) HEDIS and Quality Measurement – Clinical measures, such as Quality Index & Relative Resource Use
  • Robert Wood Johnson Foundation Aligning Forces for Quality (AF4Q) – Quantitative & qualitative clinical measures and patient experiences
  • Behavioral Risk Factor Surveillance System (CDC) – Survey of behavioral factors
  • Shortage Designation: Health Professional Shortage Areas & Medically Underserved Areas/Populations – Areas where there are shortages of primary care physicians
  • Food Deserts – Geography of nutrition
  • The Need for A Smart Approach to Big Health Care Data
  • Health Care Access/Coverage for 1995-2010
  • Lyme disease to Meningococcal
  • CDC’s Social Vulnerability Index
  • LymeDisease_9211_county
  • Leading Causes of Death by ZIP Code, 1999-2013
  • Infectious Disease Cases by County, Year, and Sex, 2001-2014
  • Compendium of Measures to Prevent Disease Associated with Animals in Public Settings, 2013
  • NNDSS – Table II. Lyme disease to Meningococcal
  • Tick Borne Diseases of the United States
  • Reported cases of Lyme disease by state or locality, 2005-2014
  • Lyme disease graphs
  • Surveillance for Lyme Disease — United States, 1992–2006
  • Climate Change Indicators in the United States: Lyme Disease
  • Infectious Disease Prevalence in Los Angeles County–A Comparison to National Estimates, 1999–2004
  • NCD-related tests Data by country
  • NCD-related medicines Data by country
  • Policies, strategies and action plans Data by country
  • Infrastructure Data by country
  • Years of Life Lost from mortality WORLD
  • Years of Life Lost from mortality Income Groups
  • Selected Diseases for latest years- Reported cases by country (latest years)
  • Burden of Disease Data by Country- Deaths Attributable to the Environment
  • Cause of Death Projections for 2015-2030 WORLD
  • Mental Health Governance Data by Country
  • Human resources Data by country
  • Mental Health Service Availability- Facilities by Country
  • Health Workforce- Absolute Numbers by Country
  • Health Workforce- Density per 1000 by Country
  • Health Expenditure Ratios, All Countries, Selected Years
  • Health Care Facilities per State
  • Environmental Quality Index by County 2000-2005
  • Water Domain Index by County, 2000-2005
  • Genome Summary Borrelia burgdorferi 118a
  • Different Ecological Niches for Ticks of Public Health Significance in Canada
  • Body weight, tick burden, and prevalence of Borrelia infection for the six combinations of sex and stage
  • 12-month health care costs and utilization, Lyme disease and control groups
  • Post-treatment Lyme disease symptom-related diagnoses, Lyme disease and control groups